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About Endurance

Endurance Program

The Cure SMA Endurance Program connects runners and cyclists across the country to train for endurance events and fundraise for Cure SMA. Endurance athletes—both veterans and newcomers alike—train, fundraise, and bring awareness to support Cure SMA’s mission of funding breakthroughs, changing lives, and empowering the SMA community.  

Find An Event    Make a Donation

How To Participate

  • Join the Movement

    Register Today

    Create a team, join a team, or register as an individual.

  • Start fundraising and spread the word

    Ask for Support

    Ask family or friends for support and share why you are participating.

  • Celebrate with Us!

    Celebrate with Us

    Run however you can and celebrate the impact we are making together.

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Your Fundraising Dollars at Work

  • Fund Breakthroughs

    Fund Breakthroughs

    Every dollar raised with Cure SMA's events helps grow research, care, advocacy, and support programs that the SMA community depends on. We will ensure everyone with SMA –from infants to adults– have the chance to live a full and productive life.

  • Change Lives

    Change Lives

    Thousands of individuals with SMA and their families receive support and access Cure SMA resources each year. With the passionate support from people like you, we can meet the ever-changing needs of all people with SMA.

  • Empower the Community

    Empower the Community

    Events across the country bring together people from coast-to-coast to raise awareness and build community. Whether you have a direct connection to SMA or not, everyone is invited to make a difference by fundraising for Cure SMA!

Cure SMA Story Spotlight

Making Waves:

Doug McCullough's Story

Before connecting with Cure SMA years ago, Doug McCullough had never met anyone else who had SMA. Doug has SMA Type 3 and works hard to promote inclusion of people with disabilities. He is an avid sports fan and participates in adaptive sports, such as cycling, kayaking, snow and water skiing, surfing, canoeing, and camping. 

Those in the SMA community often feel a roller coaster of emotions as they face diagnosis, treatment, and daily life. “Despite the historical stigma of disabilities, I never thought of myself as disabled growing up and worked to hide my ‘shortcomings’ as much as possible. I learned SMA doesn’t define me, but it is part of who I am,” said Doug. 


Read Doug's Full Story

Lighting Up the Night:

Shaakira Thomas and Family

Shaakira and her husband, Parris Sr., are parents to Aaliyah, Kassian, and four-year-old Parris Jr., who was diagnosed with SMA. Shaakira and Parris Sr. first noticed something amiss when Parris Jr. started walking. “He had a little wobble, and it took until just before his third birthday for us to get a diagnosis of SMA,” shared Shaakira.  

Despite her son’s challenges, Shaakira believes that SMA has made her family stronger. Shaakira helps support the SMA community by researching buildings that ‘light up’ for days of recognition and ensuring major landmarks across the US go purple to raise SMA awareness. 

Ready Shaakira's Full Story

Getting in the Game:

Brady Chan and Family 

Ten-year-old Brady Chan from North Carolina has big goals that stem from his passion for video games. He is part of an e-gaming team, where his favorite games include “Brawl Starts” and “Overwatch.” In the future, Brady hopes to become an engineer and create his own video games. 

Brady was diagnosed with SMA at 18 months old. Mimi, Brady’s mom says “Brady is a confident, young man with a magnetic personality. He loves reading, learning, gaming, and writing poetry. Brady loves conversation and has never had problems making friends. He does, however, see very clearly that SMA keeps him from doing things his friends can do. Sometimes, that’s okay. He doesn’t have to play on the mulched playground, and instead created a soccer crew.” 

Read Brady's Full Story